IN HONOR OF RARE DISEASE DAY 2019 (2.28.19)
(Footage from IG. So it’s short and not good quality )
In honor of #rarediseaseday.
**** often on for 20 years I have been sick. Each year I declined in my health. Some months I felt like I was on top of the world until I wasn’t. I would relapse or have something new to add to my list. I have over a dozen conditions with about half of them that are rare.
**** some days I feel on top of the world and want to jump out of a plane and other days I’m terrified of driving, some days I want to spend endless hours cooking an amazing beautiful meal and other days I go without eating, some days I can’t even get out of bed and other days I want to throw on a dress look pretty and go dancing, some days I want to cry and scream and other days I can’t stop smiling that my cheeks hurt.
******* there is no which way to look when you have an illness. We all look different. I have to member that I live in the skin and I’m not here to prove to anybody that I am sick when they believe I don’t look it.
** I wake up every day trying to live the best life I can. It’s not the end of the world, at least not yet… Not for me anyway. And with that I make sure to live every day. I wouldn’t change anything and that includes me being in a healthy body. Because without the skin that I am in who knows who could have been. I know who I am now. A strong woman who has a broken body. That’s it’s… BROKEN. But I am who I am and I love who I am and I rather be in a broken body then a healthy body any day.
****** Because of that….I celebrate Rare Disease Day 2019. 🎗️
My Instagram: @_ZebraStrong
My IG Project: @zebrastrongcarepackages
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Postural Orthostatic Tachycardia Syndrome:
http://www.dysautonomiainternational.org/page.php?ID=30
Neurocardiogenic Syncope:
https://www.sharecare.com/health/brain-nervous-system/what-neurocardiogenic-syncope
Hep C:
http://www.hepchope.com/?utm_source=bing&utm_medium=cpc&utm_campaign=Search%20-%20UNDX%20-%20Awareness&utm_term=hep%20c&utm_content=Hep%20C%20General%20-%20Exact%20-%20Overlap&gclid=CMik7KrB_9sCFbCHxQIdB8sC2Q&gclsrc=ds
Cluster Headaches:
https://www.mayoclinic.org/diseases-conditions/cluster-headache/symptoms-causes/syc-20352080
Narcolepsy:
https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497
Superventricular Tachycardia:
https://www.webmd.com/heart-disease/what-is-supraventricular-tachycardia
Panic Attacks:
https://en.wikipedia.org/wiki/Panic_attack
Tourettes:
https://www.webmd.com/brain/tourettes-syndrome
Obsessive-Compulsive-Disorder :
https://www.webmd.com/mental-health/obsessive-compulsive-disorder
Mast Cell Activation Syndrome:
https://tmsforacure.org/symptoms/symptoms-and-triggers-of-
Bradycardia:
https://www.webmd.com/heart-disease/bradycardia
Gastritis:
https://www.webmd.com/digestive-disorders/digestive-diseases-gastritis
Restless Leg Syndrome:
https://www.webmd.com/brain/restless-legs-syndrome/restless-legs-syndrome-rls
Patellafemoral Syndrome:
https://www.mayoclinic.org/diseases-conditions/patellofemoral-pain-syndrome/symptoms-causes/syc-20350792
Borderline Personality Disorder
https://www.nimh.nih.gov/health/topics/borderline-personality-disorder/index.shtml
Autism(ASD1) with severe verbal over-stimulation and OCD
https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd/index.shtml
SURVIVOR: Pre Ovarian Cancer & Advanced Endometriosis in 2010)
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CAMERA
-Canon T6i
-Iphone X
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EDITING SOFTWARE
-Wondershare Filmora
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MUSIC
~RISE (Katy Perry Cover) by SUPERFRUIT, Mary Lambert, Brian Justin Crum, Mario Jose
https://www.youtube.com/watch?v=U85U3…
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