Fatma Gus Ipul provides assistance to children with a rare disease

Jakarta – The Ministry of Social Association (DWP) Dharma Advisor (DWP) of the Ministry of Social Affairs, Fatma Saifullah Yusuf and Intan Agus Jabo Priyono greeted children with a rare disease. They salute in the social rehabilitation workshop of persons with disabilities – Indonesia Rare Disorder (ID. Fatma Saifullah Yusuf said that this activity is a form of dedication from the Ministry of Social Affairs to support the growth and development of children with rare diseases by comprehensive services. may be, “Fatma, in a being, can be a more productive way (4/17/2025). From the Faculty of Medicine, University of Indonesia and Clinical Psychologists. In this activity, 25 children receive adaptable tools, such as adaptable wheelchairs, standing frames, walking tools, as well as supplementary and alternative communications (AAC). Blood sugar examinations, cholesterol and gout. The total assistance of the distributed attention program reached RP 112.5 million, consisting of 10 customizable wheelchairs, 10 street tools and standing frames, as well as 5 AAC communication instruments. Not only that, the atmosphere is becoming increasingly alive with the exhibition of the empowerment of people with disabilities of different centers leading to the Ministry of Social Affairs, including paintings by GDPPKS Bandung and Mulya Jaya Jakarta, and Handayani centers of the integrated Souweno (Sti’s), Bogor Batik and Shhori van Galih Pakuan and Handani, GDPPKS and Jakarta centers, as well as flower accessories and handmade centers of SOIs and Handayani. Representative of IRD Henning, expressed his gratitude for holding the event. He also said the workshop activity kept happiness to the children and all the participants. “Thank you for keeping an opportunity like this, as well as caring or paying attention to our children through many full service facilities, even we didn’t think the room was made so well, made us move and make us happy, I was even worried that the kids were confused and didn’t want to go home,” Herning said. In addition to services, the event also offers Talkshow and interactive discussion with speakers of the Ministry of Health, BPJS health, nutritional specialists and IRD community, as well as parental testimonies and children’s companions with rare conditions. Then parents or children’s families get a consultation and education room over the handling of rare illnesses at home through talk shows. Director of health services that are vulnerable to the Ministry of Health Imran Pambudi expressed his support for the importance of attention to the growth and development of children with holistic rare diseases. He emphasized that in addition to medical and therapeutic services, the mental health of parents who consider the child every day should also be a major concern. “Rare conditions in children can be the cause of parents who experience burnout in the performance of parenting, so psychosocial support is an inseparable part of health services,” says Imran. (ANL/EGA) HOEGENG Awards 2025 Read the inspiring story of the exemplary police candidate here